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FedupFeds topic page and Repetitive Strain Injuries  FedupFeds topic page

 

"It Only Hurts When I Take Depositions"   -- Certified Pain Practitioner Marilyn Oakes exposes the pain myths and the deficiencies of doctors untrained in pain management
Need help finding good pain treatment?  The best list of pain clinics may be Pain Clinics.  See also Links to Directories of American Pain ClinicsTake advantage of the resources of the American Chronic Pain Association, with 800 chapters worldwide.  If you can't get the right doctor and need help NOW, try these people
For back pain look at Lower Back Pain, and A Patient's Guide to Low Back Pain, and  Chronic Pain after Spinal Cord Injury and Back Pain - New Surgical Techniques 
Pain Online Main Page the phenomenon of central pain
Mind's Effects on Pain - in the Better Health site has many resources on specific kinds and sources of pain, as well as information on coping and minimizing pain
In Pain- Public Information you find questions you should ask about qualifications of your pain specialist, patients' bill of rights, state listings, and other pain information. For pain after surgery, look at Consumer Guidelines in the AHCPR GuidelinesConsumer Pain Information has many resources for pain patients
Medscape has official Clinical Guidelines published for competing therapies for the categories of back pain, backache, nerve root pain, and more severe pathologies. If you need a password just go back to Medscape home page and register for free. In Medscape see also Lumbar Disc Surgery, AMA study --difficult medical terminology
IASP -- International Assoc. for the Study of Pain also has a useful dictionary of pain terminology
See The Pain Page--Dedicated to sufferers of chronic pain
The denial of chronic pain by Robert W Teasell MD FRCPC from Pain Research and Management
Chronic Pain, Questions and Answers
Managing Daily Life When Dealing with Chronic Pain
Aches & Pains & Natural Relief, Alternative treatments for when it hurts
For headache pain see Headaches Vascular and Migraine, Migraine - Doctor's Guide to the Internet, & What's New at National Headache Foundation
Fibromyalgia and Chronic Myofascial Pain Syndrome ( FMS MPS )
Many Americans With Chronic Pain Misdiagnosed New York July 17, 1997 Doctor's Guide to Medical and Other News
See important insights in Pain Management Center site, where they point out that much patient pain is inadequately treated, and that "unmanaged pain can lead to profound adverse effects in patients' physiological, psychological and immunological functions". You will want to subscribe to their mailing list (email) by sending email to listserv@sjuvm.stjohns.edu (just click on that underlined listserv address) and leave the Subject line blank, and in the Message section type SUBSCRIBE PAIN-L (and your name) (example: SUBSCRIBE PAIN-L Jane Doe). They will email instructions. This site is part of Wellness Web - The Patient's Network with a very broad list of categories and online resources
Coping with Chronic Pain. Pain That Won't Go Away  by the American Pharmaceutical Association
"Chronic pain takes a psychological toll"
Pain is a blind guide in injury management   "Chronic Pain is a self-sustaining, self-reinforcing, and
self-regenerating process. It is not a symptom of an underlying acute somatic injury but rather, a destructive illness in its own right. It is an illness of the whole person and not a disease caused by the pathological state of an organ system.  Chronic pain is persistent, long-lived, and progressive. Pain perception is markedly enhanced. Pain related behaviour becomes maladaptive and grossly disproportional to any underlying noxious stimulus, which usually has healed and no longer serves as an underlying pain generator..." 
See Chronic Pain, CFS, and  Fibromyalgia
Stop the Pain --AFL-CIO program
Resources for Pain Patients online/offline pain organizations
GOOD paindoc
Pain- AMNews feature Dec. 14 1998
Pain clinic map
Look in http://www.goedhart.com/ and find mailing lists you can subscribe to where ordinary (and medical ) people post their own messages about pain and their experiences, ICQ and PowWow chats about pain, and chronic pain resources.   There's a newsgroup for chronic pain: news:alt.support.chronic-pain
Mensana tools for diagnosis
    From Mensana Clinic (take a look at their credentials)
Depression Caused by Chronic Pain   by Dr. Nelson Hendler
    
(In the Mensana links here, you may have to copy the URLs and paste into the browser window and <enter>, due to some quirk in their website)
     The Journal of Workers Compensation--Chronic Back Pain Which Test is Best
http://www.mensana.com/workers%20comp.htm

     "Mis-diagnosis is a common source of problems in disability cases. In one study (at) the Mensana Clinic, they found that 66.7% were misdiagnosed."  In the Journal, Mensana argues that the wrong tests do not reveal physical causes of pain.
     Validating and Treating the Complaint of Chronic Back Pain The Mensana Clinic Approach http://www.mensana.com/validating%20and%20treating.htm
     Overlooked Physical Diagnoses in Chronic Pain Patients Involved in Litigation (part 1)
http://www.mensana.com/overlooked%20physical%20diagnoses%20(part1).htm
     Overlooked Physical Diagnoses in Chronic Pain Patients Involved in Litigation (part 2)
http://www.mensana.com/overlooked%20physical%20diagnoses.htm
     Three-Dimensional CT Validation of Physical Complaints in "Psychogenic Pain" Patients http://www.mensana.com/3D%20CT.htm
Pain medicine   and doctors' fear of DEA

 

Chronic Pain Relief Coalition to support legislative reform of drug policies, and to enact a national "Pain Patient's Bill of Rights." Currently, many patients do not have access to FDA-approved pain medications, or controlled Schedule II opioid medications needed to relieve severe, chronic and intractable pain. Most physicians are reluctant to prescribe these medications for fear of disciplinary action by the DEA and state medical boards.  See their article: Commentary: The Practice and Politics of Pain Treatment.  A leading physician makes the strongest appeal for aggressive pain medication in acute and chronic pain.  The new clinical practice guidelines on acute pain issued on March 5th, 1992 in a report by the new federal Agency on Health Care Policy and Research (AHCPR). The new guidelines are aimed at relieving the unnecessary agony suffered by many patients after operations, trauma, or painful medical procedures.
Compassion in Dying seeks penalties for doctors who fail to control terminal suffering
Florida Guidelines for Management of Pain Using Dangerous Drugs and Controlled Substances
Treating Patients with Chronic Pain What Can Medical Boards Do
JAMA report, American Medical Assoc. "The statement by the American Academy of Pain Medicine and the American Pain Society —which contains prescribing guidelines — comes at a critical time. Many state legislatures, health departments, medical boards and medical societies are revising policies on the issue in light of a growing body of evidence that opioids may, in fact, be the treatment of choice for some chronic conditions."
American Society for Action on Pain (ASAP) is activist org for adequate pain treatment and drug policy reform. They link to a comprehensive study of licit and illicit drug use by Consumer Reports with surprising conclusions.  ASAP offers many links dealing with the politics of pain treatment, esp. The tragedy of needless pain. Contrary to popular belief, the author says, morphine taken solely to control pain is not addictive. Yet patients worldwide continue to be undertreated and to suffer unnecessary agony.  See ASAP's March Against Pain.
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